The Foundation for Prader-Willi Research was established in 2003 by a small group of parents who saw the need to foster research that would help their children with Prader-Willi Syndrome lead more healthy and fulfilling lives.



To eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder, freeing loved ones from the burdens of PWS, and allowing them to lead full and independent lives. Learn more at

We select research projects based on the collaborative input of researchers and parents, choosing projects that are both scientifically meritorious and highly relevant for individuals with PWS and their families.
— Susan Hedstrom, Director FPWR

fpwr Achievements

  • Committed more than $10,000,000 to support PWS-related research projects. 
  • Funded 148 PWS-related studies since 2003.
  • Studies funded by FPWR have been published in top medical journals, including Nature Neuroscience, Proceedings of the National Academy of Sciences, Molecular Cell, PLoS One, Endocrinology, and Human Molecular Genetics.